life is mostly just one big to do list

there's a lot that I plan to share with you there's a lot that I need to catch you up on. Between the crushing fatigue of the fibromyalgia the nerve tendon and joint pain from the Lyme disease the daily migraines the severe back pain its all I can do to get out of bed and face my life. I haven't been functioning at a very high level, on the other hand given my body the way it is I get a relative high amount of things done.

I went to the Food Stamp office and I will blog about that another time it was a horrible experience with a five hour wait my clerk was very rude and grab the papers out of my hand! The next time I go back cuz they want me to come back I'm going to request another case worker I've got $1 a day to last for 2 weeks, I tried to go to the Food Center the rescue mission to eat but most of the time I can't stand the food so that's not really a good option.

I also had a consult with the breast surgeon and he was a real a****** and very disrespectful of me, some doctors resent it when you tell them that you have been studying up about your condition, they resent and educated woman. The bottom line is I still do not know if I have breast cancer or not and I am supposed to be meeting with another breast breast cancer console surgeon. All I can say is oYy vey!

"Health Update"

Initially when I began blogging I didn't expect to be talking so much about my poor health.  But it is the deciding factor on whether I have quality of life or not, which you know I do not.

I have been chewing on the right side for 2 months because my insurance doesn't cover dental!  the entire left side of my mouth hurts and I assume I have cavities.

I had the x ray done of my entire back, hoping to determine why I have such debilitating back and tailbone pain.  At this point all I know (from older diagnosis) is that I have arthritis of the neck and spine (and probably knees also)  I know I have degenerative disc disease and coccyxademia. 

I have fibrocystic breasts which has been so pain ful the last 10 days I can barely leave house or get dressed.............................

My right knee is killing me and I often limp.  It hurts to stand and to walk

The pain management doc raised the meds a little bit.  This last time they had me see their n.p. and she was brilliant!  I told her that if the meds don't work this time then I will try the mmj again.

It's critical also that iget an eye exam because folks with severe myopia are at higher risk of retinal detachment.

Last night I don't know where my neighbor was but I slept through  the night which can only mean that her and her kids were not there.  If I slept like this every night it would make such a diff. to my quality of life.

"Blood test results"

 I was worried that my Lyme Disease was progressing rapidly, so I  had a bunch of blood tests done.

albumin level was low

  No surprise really. in that I've incurred years and years of severe malnourishment and severe food shortages.   My lyme disease test came back as negative.

  Are you confused? There are different camps of thinking on Lyme. Some believe that even when a blood test shows up negative you may still have Lyme. My current doctor adamantly disagrees with that and says that I absolutely do not have lyme disease.

I am borderline anemic, so I should increase my iron levels. 

  My B12 is normal, that was a surprise.

  My thyroid was normal and that was a surprise.

  There is an auto immune test that they do that is called ANA and I can not remember what those letters stand for. It was positive and that isn't good, but my Dr. is not worried.

Regarding the terror  over my nerve damage and the fact that my limbs have 24/7 pins and needles, numbness and frequent falling asleep, my doctor wants me to see a neurologist.

 He said he can't make predictions such as whether or not I'd end up in a wheelchair, and doesn't want me to worry, but to have the neurologist look into the ANA thing further, so I can find out the source of the nerve damage, which I assumed was the Lyme, since it is a Lyme symptom.

This is the best health care I've had in 20 years, and it's been a long time coming. I'll keep you informed on the outcome of my upcoming appointment with the neurologist.