"She wasn't sleeping and looked like she was being tortured"
(As I've said, I'm not aware of anybody besides me who can go months without falling asleep. It's literal torture)
Showing posts with label severe insomnia. Show all posts
Showing posts with label severe insomnia. Show all posts
Sunday, September 10, 2017
Monday, June 19, 2017
Xtremely severe insomnia
in the last 4 weeks I've slept 8 hours in a block of two different nights other than that I don't fall asleep until after 6 a.m. and even then I don't fall asleep I mean if I'm lucky I'll sleep 3 minutes wake up be awake for 2 hours sleep another 3 minutes wake up this is just something that's been going on for my whole life and I'm barely standing
Sunday, January 8, 2017
Few minutes
The severe muscle, spine pain and more means I only sleep in fragments of a few minutes.
Its unbearable desperate pain and every night you wonderful how much more you can take.
As I said before, I'm paralyzed for hours. Cant change positions, get extra blanket, and it takes me hours before I can get to bathroom.
This started in the eighties but got much worse after I incurred lyme disease.
Sunday, July 19, 2015
Can't sleep
The fatigue has been very extreme really can't do much of anything but g attempt to sleep.
I guess it should be expected since I was hoping to go back to work part time, can't tolerate this poverty and want to do some traveling. But I'm lucky if I can travel from the bedroom to the kitchen
Saturday, February 28, 2015
migraine and sleep deprivation
doesn't seem that I am sleeping any more than a few minutes a night. What appears to be happening is I sleep for a few minutes I'm awake for 2 hours I sleep for another 5 minutes I'm awake for a few hours again. Every night is horrific nightmares in there are more symptoms as well that I have been discussing in my facebook support groups. .i AM PTSD so I know that that is contributing to how little I sleep and the fact that the sleep with such poor quality. Of course people with fibromyalgia don't usually get more than 2 or 3 hours of sleep a night so there are a lot of things going on.
I found out that my insurance totally covers having a sleep study.
In a few days I have my appointment. like a consult. They give patients the option of either just coming in and doing the sleep study right away or having an appointment first to discuss concerns or questions.
I have had a migraine every day for the lAst 2 months. It waxes and wanes in severity. the medicine helps to a certain degree,but I just don't know what can be causing these migraines.
Obviously the fact that I sleep so little can definitely contribute, obviously when I had chainsmokers living below me that was a huge factor but they don't live down there anymore.
If I had 75 dollars I would buy a mold test kit. in my last 2 months in my one bedroom apartment in Hampstead Maryland was when I discovered that that apartment had a very severe mold problem. One of my neighbors discovered it in her unit and little by little it was determined that most of the units had bad mold. But the owners denied the severity of the problem and did not want to spend any money on trying to get rid of it
.i my lungs hurt my throat is sore a lot my voice is raspy so it is possible that when the maintenance man flooded my apartment by busting water heater that mold Grew, on the other hand this is a very dry climate so I just simply do not know.
But the sleep deprivation and the migraines are definitely a huge contributor to being at 80 to90% homebound.there is such unpredictability with my health that I missed 3 appointments in 3 days last week. I would love to go back to work part time but I'm going to have to start with just one day a week because I don't want to set myself up in a job where I'm constantly missing work due to illness. This is a huge advantage of going through vocational rehabilitation they already know in advance what your disabilities and limitations are.
I found out that my insurance totally covers having a sleep study.
In a few days I have my appointment. like a consult. They give patients the option of either just coming in and doing the sleep study right away or having an appointment first to discuss concerns or questions.
I have had a migraine every day for the lAst 2 months. It waxes and wanes in severity. the medicine helps to a certain degree,but I just don't know what can be causing these migraines.
Obviously the fact that I sleep so little can definitely contribute, obviously when I had chainsmokers living below me that was a huge factor but they don't live down there anymore.
If I had 75 dollars I would buy a mold test kit. in my last 2 months in my one bedroom apartment in Hampstead Maryland was when I discovered that that apartment had a very severe mold problem. One of my neighbors discovered it in her unit and little by little it was determined that most of the units had bad mold. But the owners denied the severity of the problem and did not want to spend any money on trying to get rid of it
.i my lungs hurt my throat is sore a lot my voice is raspy so it is possible that when the maintenance man flooded my apartment by busting water heater that mold Grew, on the other hand this is a very dry climate so I just simply do not know.
But the sleep deprivation and the migraines are definitely a huge contributor to being at 80 to90% homebound.there is such unpredictability with my health that I missed 3 appointments in 3 days last week. I would love to go back to work part time but I'm going to have to start with just one day a week because I don't want to set myself up in a job where I'm constantly missing work due to illness. This is a huge advantage of going through vocational rehabilitation they already know in advance what your disabilities and limitations are.
Sunday, January 18, 2015
still very seriously ill
the only thing that's new is that instead of being 75 or 80 percent homebound I've been 99% homebound in the last 6 weeks.
My my doctor will in my particular case my nurse practitioner said to me the other day will you look fine to me how can you say that your health is declining rapidly?
I'm in utter disbelief this is a sure sign that I am going to have to find another physician. She's been with me for 21 months and does not consider excruciating pain that never goes away to be a problem? That's a problem exclamation! That is a real problem.
I couldn't fall asleep after taking to rest real pills so I took a seroquel as well. The banging quieted down in my building and I slept nearly 16 hours. I know a lot of people that sleep this much all the time but for me it's unprecedented. So I don't mind at all that I've been awake all night it's Sunday morning I've been I never went to sleep that's okay I hope to get out of the house even though the pain is still unreal just absolutely unreal I mean the only break that you get is when your sleeping.
To in my real life I can't find anybody else who lives every single day in excruciating pain their whole body that is. I found the number of people in chronic pain on Facebook but I can't find too many people who are in excruciating pain
I don't know if it's the line where the fiber my algia I also have some other undiagnosed things going on but as I've told you before I'm not willing to go on indefinitely living like this
My my doctor will in my particular case my nurse practitioner said to me the other day will you look fine to me how can you say that your health is declining rapidly?
I'm in utter disbelief this is a sure sign that I am going to have to find another physician. She's been with me for 21 months and does not consider excruciating pain that never goes away to be a problem? That's a problem exclamation! That is a real problem.
I couldn't fall asleep after taking to rest real pills so I took a seroquel as well. The banging quieted down in my building and I slept nearly 16 hours. I know a lot of people that sleep this much all the time but for me it's unprecedented. So I don't mind at all that I've been awake all night it's Sunday morning I've been I never went to sleep that's okay I hope to get out of the house even though the pain is still unreal just absolutely unreal I mean the only break that you get is when your sleeping.
To in my real life I can't find anybody else who lives every single day in excruciating pain their whole body that is. I found the number of people in chronic pain on Facebook but I can't find too many people who are in excruciating pain
I don't know if it's the line where the fiber my algia I also have some other undiagnosed things going on but as I've told you before I'm not willing to go on indefinitely living like this
Tuesday, July 8, 2014
"Been awake for about 2 weeks"
The old sleep med has stopped working. Last night I found an older sleep med and tried it. Took 25 mg. If not asleep in an hour, I took another 25, after an hour I'm still not asleep. Took 75 and at least slept a couple of hours. Weak and in a great deal of pain. Pretty low functioning.
Thursday, July 25, 2013
"Vertigo"
I have been awake for goodness knows how many days. Last night, I could feel my body spinning very fast in circles around the room. Anytime I opened my eyes, I could see the room spinning. No, I did not drink and nothing is different with my meds. It is very scary.
I considered calling 911 but I have been hospitalized many times for vertigo and they can never do anything about it. I haven't had a case of vertigo this severe in a long time. I remember even as a child seeing my bedroom spin in circles.
So I tried to reschedule the 2nd extermination but they could not do it. It's a lot of work on my part, and I didn't want to have to be out on busses with electrical storms and dizziness. But no choice because I am required to be out while they "exterminate"
I considered calling 911 but I have been hospitalized many times for vertigo and they can never do anything about it. I haven't had a case of vertigo this severe in a long time. I remember even as a child seeing my bedroom spin in circles.
So I tried to reschedule the 2nd extermination but they could not do it. It's a lot of work on my part, and I didn't want to have to be out on busses with electrical storms and dizziness. But no choice because I am required to be out while they "exterminate"
Tuesday, April 2, 2013
Animals and Sleep/Radio Lab
a.n. equals authors note (me!)
About 40 percent of the writing i do in my journal is notetaking from listening to npr!
It is my hope to share the notes and the shows but it is tough to keep up
On Radio lab almost 3 weeks ago they did a show on sleep. I wasn't as interested in the animal part as the human part, and i did miss maybe the first 10 min. of the show. But this is so so relevant since i only sleep a few minutes a night these days.
here are my notes from the show
Scaly ancestors took millions of years to close both eyes!
You have a higher risk of being killed if you sleep and are an animal (a.n.=and true for certain humans as well!)
Enter sleep lab in Minn.
they were viewing sleep terror episodes people have visceral dreams of being attacked. parasomnia means around sleep
Dr. Shenk
Martin Z is a patient who beats his wife while he sleeps!
---------------------------------------------------
35 million americans have chronic insomnia
Steve Lima is Indiana State University
Mom's name is hannah, she made audio diary about her trouble with sleep. At her job she had trouble speaking due to sleep deprisivation. When her baby would not sleep people would give her stupid advice constantly/implying she is a failure at being a mom.
When she does however get her proper sleep she feels she has a great life!
Sleep deprivation keeps you angry she says (and i would have to agree!)
Hanna said "You CRAVE sleep!
Chemically what happens during sleep deprivation? asks employyee of Univ. of PA
"You have an unfolded protein response; where Proteins are accumulating in your cells as clumps and this is toxic!
It causes your cells to break down. Therefore sleep is a cleaner uppper (one serious problem i'm having with my roomate keeping me up around the clock is chronic migraines)
--------------------------------------------------------
Professor of psychiatry at Madison says "Every thought we have causes new connections. During sleep, the connections weaken
Bob Stickgold from Harvard asks Why do we dream
Matt Wilson is a neuroscientist from the dream lab.
Dreaming allows you to try new things.
In the lab after folks slept for 2 minutes, we would wake them up/that's the high point of your day (?)
Then we would let them sleep 2 hours then awaken them. the dream is a remix of the day, the dream free associates.
You work our your problems while sleeping
Dreaming is very emotional, technicolor!
a.n . All i can tell you is this. Severe sleep deprivation is nothing short of torture. All i can do right now is just go through the motions of survival. I cannot do anything to really bettter my life until i catch up on sleep
About 40 percent of the writing i do in my journal is notetaking from listening to npr!
It is my hope to share the notes and the shows but it is tough to keep up
On Radio lab almost 3 weeks ago they did a show on sleep. I wasn't as interested in the animal part as the human part, and i did miss maybe the first 10 min. of the show. But this is so so relevant since i only sleep a few minutes a night these days.
here are my notes from the show
Scaly ancestors took millions of years to close both eyes!
You have a higher risk of being killed if you sleep and are an animal (a.n.=and true for certain humans as well!)
Enter sleep lab in Minn.
they were viewing sleep terror episodes people have visceral dreams of being attacked. parasomnia means around sleep
Dr. Shenk
Martin Z is a patient who beats his wife while he sleeps!
---------------------------------------------------
35 million americans have chronic insomnia
Steve Lima is Indiana State University
Mom's name is hannah, she made audio diary about her trouble with sleep. At her job she had trouble speaking due to sleep deprisivation. When her baby would not sleep people would give her stupid advice constantly/implying she is a failure at being a mom.
When she does however get her proper sleep she feels she has a great life!
Sleep deprivation keeps you angry she says (and i would have to agree!)
Hanna said "You CRAVE sleep!
Chemically what happens during sleep deprivation? asks employyee of Univ. of PA
"You have an unfolded protein response; where Proteins are accumulating in your cells as clumps and this is toxic!
It causes your cells to break down. Therefore sleep is a cleaner uppper (one serious problem i'm having with my roomate keeping me up around the clock is chronic migraines)
--------------------------------------------------------
Professor of psychiatry at Madison says "Every thought we have causes new connections. During sleep, the connections weaken
Bob Stickgold from Harvard asks Why do we dream
Matt Wilson is a neuroscientist from the dream lab.
Dreaming allows you to try new things.
In the lab after folks slept for 2 minutes, we would wake them up/that's the high point of your day (?)
Then we would let them sleep 2 hours then awaken them. the dream is a remix of the day, the dream free associates.
You work our your problems while sleeping
Dreaming is very emotional, technicolor!
a.n . All i can tell you is this. Severe sleep deprivation is nothing short of torture. All i can do right now is just go through the motions of survival. I cannot do anything to really bettter my life until i catch up on sleep
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