Symptoms bizarre and often a mystery

Two, maybe three times a year I'll get out of bed and initially my eyes feel awake not heavy. It will feel as if I could accomplish 6 to 8 hours worth of tasks. Not an hour and a half later, I'll be out and about and my eyes will get very heavy and all I can think about is how badly I need to sleep.

When possible, especially now that winter is setting in; I'll do one day home, one day out. I'm so so limited with the pain the weakness and the nerve damage.

One one of my happiest days in "Mountain Town" I was telling the driver who I hitched a ride with that the joy of the day was so big I had no words to describe it. It was in June, and I had discovered despite all of my serious illnesses that I still had the capacity to hula hoop damn well, and dance for long periods to the band.

The driver had also had lyme like me and when I told her how long it was before I got treated, she said "untreated lyme sometimes leads to Lou Gehrig's disease. I told her it didn't surprise me because I've had frequent symptoms over the last 6 years that make me feel like Stephen Hawking.

But my friend m.r. also knows alot , like an expert, about lyme, and had never mentioned Lou Gehrigs to me..........................

You would be surprised how many people out in society "look good" and are sick as dogs with various illnesses. Ya can't judge a book by it's cover!