A couple of times a year I wake up feeling rested. It will feel as if I could accomplish 6 to 8 hours worth of tasks. Not an hour and a half later, I'll be out and about and my eyes will get very heavy and I have no choice but to return home. With fm (fibromyalgia) sleep is not typically restful.
When possible, especially now that winter is setting in; I'll do one day home, one day out. I'm extremely limited with the pain, the weakness and the nerve damage.
On one of my happiest days in "Mountain Town" I was telling a driver who I hitched a ride with that the joy of the day was so big I had no words to describe it. It was in June, and I had discovered despite all of my serious illnesses that I still had the capacity to hula hoop AND dance.
The driver also had lyme disease like me! When I told her how long it was before I got treated, she stated that:
"untreated lyme sometimes leads to Lou Gehrig's disease! I told her it didn't surprise me because I've had frequent symptoms over the last 6 years that seem to mimic those of Lou Gehrig's disease. ;(
(But my friend randy* is a lyme disease expert and never mentioned a link between the 2 diseases.)
You would be surprised how many people out in society look perfectly healthy but have one or more serious diseases. Many folks (including myself) look healthy but definitely r not.
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